Medical lobbyists are said to spend half a billion dollars a year, and every actor in the system--hospitals, doctors, nurses, nursing homes, pharmaceutical companies, and so on--has its advocates, except the one group for which the system exists to serve: the consumer of health-care services, the patient.
Call it the missing link in health care policy, an omission the press does little if anything to address. Yes, AARP draws some attention, but the many millions it pockets from providers (AARP terms the payments “royalties”) compromises its ability to be a true consumer advocate; in truth, it is more provider than spokesman for patient interests.
I became aware of the “missing link” years ago when I was appointed by Iowa’s governor to be a consumer representative on the state’s health planning council. Consumers were well-represented on the council; in fact, we were the largest single group, but we were impotent, since we had no organized constituency. Lacking that, we had no agenda. The providers, representing organized groups, knew exactly what they wanted.
The lesson that I learned years ago--that patients must be organized to have an effective voice in health-care policy--is still valid today because the “missing link” is still missing. For all of the attention lavished on health care, it’s startling that no single organization of patients exists to lobby in behalf of their interests.
So, patients, get off your bedpans and get organized.
WELCOME to the debut of “The Truth Is!”, a blog of reporting and commentary that aims to be informative, thoughtful and provocative. At least initially, the blog will have a strong heartland flavor by virtue of the connection of a number of us to Cowles family journalism. I am former editor of the Des Moines Register’s opinion pages. Another contributor, Michael Gartner, is former editor of the paper; he later served as president of NBC News. Another former Register editor who has agreed to contribute, Geneva Overholser, is director of the University of Southern California’s Annenberg school of journalism. Followers of the blog will have access also to the work of Herbert Strentz of Des Moines, a close Register and other newspaper watcher who once headed Drake University’s journalism school. Bill Leonard, a longtime Register editorial writer, will add insights.
“The Truth Is!” will be supervised by my daughter, Marcia Wolff, a communications lawyer for 20 years with Arnold and Porter (Washington, D.C.). Invaluable technical assistance in assembling and maintaining the blog is provided by my grandsons Julian Cranberg, a college first-year, and Daniel Wolff, a high school senior.
If you detect a whiff of nepotism in this operation, so be it. All of it is strictly a labor of love. —Gil Cranberg
Subscribe to:
Post Comments (Atom)
1 comment:
Very well stated Gil. Unfortunately, the healthcare industry is not the only industry in which the consumer's voice is the "missing link."
Post a Comment